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Self Advocacy
Two seated men speaking at the Arc of Monroe office, one man has large notebook open on his lap.

 

Self Advocacy - Empowering the decision making process.

 

The Arc of Monroe County is a leader in supporting self-advocacy and is committed to individuals with disabilities taking an active role in all decisions concerning their lives and goals.

At The Arc of Monroe County, self-advocates participate in key decision-making forums, including having representation on The Arc of Monroe County Board of Directors.

The Arc of Monroe County sponsors several self-advocacy groups including “The Alliance”, “Independently Together”, and “Speaking Out Advocating Rights” (SOAR). These groups proactively promote respect, dignity, and quality of life for all individuals with a disability. Working at the local, state, and national levels, they advocate for legislative and community change, and offer education and training to their members and to the community at large.

Members of the self-advocacy initiative support individuals in making educated choices, participating in key decision making, and having the right to assume responsibility for their actions.

For more information, contact Kathy Moylan, Senior Administrator for Transition Services, at 585-698-1331.

 

People First Language
By Rebecca Hasman (A member of the Self-Advocacy Alliance)
 
 
People-First Language is the kind of language that is respectful to people with disabilities. It encourages everyone to put the person first before their disability. People-First Language is what a person has, not what a person is. When we use People-First Language we stop using words that are offensive; Handicapped, Crippled, Retarded, etc, and replace them with words that are more respectful. People-First is all about dignity and respect!
Here is a list of words and phrases of what you should and should not use when you talk about people with disabilities:
 
Use any of these phrases: People with disabilities/People with different gifts/People with different capabilities/People with different needs/People with different abilities.
Instead of: The handicapped/People with handicaps/The disabled/People with special needs/People with challenges.
 
Use the word: Epilepsy.
Instead of: Epileptic.
 
Use the word: Down syndrome.
Instead of: Down's person/Mongoloid.
 
Use any of these phrases: Cognitive Disability/Intellectual Disability/Mental Disability.
Instead of: Mentally Retarded/Mentally Disabled/Mental Retardation/MR/Mentally Challenged/Retarded/Mentally Handicapped/Mentally Deficient.
 
Use any of these phrases: Congenital Disability/Congenital Impairment/Congenital Abnormality/Genetic Disorder.
Instead of: Birth Defect/Brain Damaged.
 
Use the word or phrase: Hyperactivity/Acts hyper.
Instead of: Hyperactive/Hyper.
 
Use any of these words: Developmental Disability/Developmental Delay.
Instead of: Developmentally Disabled.
 
Use the word: autism.
Instead of: autistic.
 
Use the word/phrase: Deafblindness.
Instead of:  Deaf, dumb, blind, and mute.
 
Use the word: Learning Disability.
Instead of: Learning Disabled/LD.
 
Use the word: Physical Disability.
Instead of: Lame/Crippled/Spastic/Physically Disabled.
 
Use any of these phrases: Wheelchair Accessible or Reserved parking, van, hotel room, bathroom.
Instead of: Handicapped parking, van, hotel room, bathroom.
 
Use any of these phrases: Uses a wheelchair or a motor chair.
Instead of: Wheelchair-bound/Confined to a wheelchair.
 
Use any of these phrases: Uses a communication device or Sign Language/Communicates with eyes.
Instead of: Nonverbal/Mute/Doesn't speak or talk.
 
Use any of these phrases: Needs behavior supports/Needs a communication tool/Follows a different kind of diet.
Instead of: Has behavior problems/Has challenges/Can't talk/Follows a Special Diet.
 
Use the word: Paraplegia.
Instead of: Paraplegic.
 
Use the word: Quadriplegia.
Instead of: Quadriplegic.
 
Use the word: Visual Impairment.
Instead: Blind.
 
Use the phrase: Has a disability (diagnosis of)
Instead of: Suffers from (diagnosis of)/Struggles with (diagnosis of)/Is a victim of (diagnosis of)/Has a disease (diagnosis of.)
 
Use any of these phrases: Hard of Hearing/Hearing Loss.
Instead of: Deaf.
 
Use the phrase: Multiple Disabilities.
Instead of: Multiply Disabled.
 
Use any of these phrases: People without disabilities/Neurotypicals/Typical people.
Instead of: Healthy people/Regular people/Normal people.
 
Use any of these phrases: Mental Illness/Mental Disorder.
Instead of: Emotionally Disturbed/Has emotional problems/Suffers from a Mental Illness.
 
Use the phrase: Receives special ed services/Special Education services.
Instead of: Special ed kid/student.
 
Use any of these phrases: Little person/Short Stature/Dwarfism.
Instead of: Midget/Dwarf.
 
Use any of these phrases: Citizen/Individual/Customer.
Instead of: Client/Recipient/Consumer.
 
Use the phrase: Successful, productive member of society.
Instead of: Overcame the disability/afflicted by the disability.
 
Use the phrase: Arc of Monroe.
Instead of: A-R-C/Association for Retarded Citizens.
 Use the phrase: Become more Interdependent.
Instead of: Become more Independent.